Throughout our lives we are hospitalized more than the average person. Reasons for being admitted can vary from malnutrition, depression, pulmonary exacerbations, GI complications, and so much more. The first admission can be intimidating, but over the course of time we learn the ropes and get into our own little groove of things.
My first admission was the spring of 2002. I was overwhelmed and scared, as was my mother. Little did I know that this week and a half would initiate me into the life of required tune ups.
I've composed a list of things to bring and what to expect.
what to bring (many are optional, but common):
house shoes- you don't want to walk around barefoot...it's an easy way to pick up germs of others. You'll most likely have testing done, and it's more convenient to slip on some shoes than to have to tie/untie each time you're needed somewhere.
pajamas- comfy material, easy to slip on/slip off, nothing too tight or revealing
jeans and t's- this is just my opinion, but I hate wearing my PJs all the time. it seems to enhance the idea of being sick.
extra socks
easy to wear sweaters (zip up work best in my opinion)
hair brush, toothbrush, shampoo, conditioner, lotion, chapstick, make up (if you wear it), blow dryer, hair straightener (if you use one!), body wash, deodorant (most hospitals provide the basics upon admission, but it never seems to be enough or of preferred quality)
paper and pen
list of medications and medical history, emergency contact list, list of allergies
medications- especially enzymes- you'll want to have a few doses with you because many hospitals have to order them from their pharmacy. this usually takes a couple of hours, but can last longer depending on supply and demand.
pillow cases, blankets, your own towels if you'd prefer them.
snacks
if you're admitting your child, be sure to include stuffed animals, toys, books, colors, and other activities to keep them busy and entertained.
what to expect:
Every admission and patient is different. Generally, an IV/PICC is placed, or a port is accessed, nurses and doctors will ask the SAME questions, check vitals, stats, blood work will be done, X-rays, CT scan, and many other basic tests. Viral swabs may be done, as well as a wide variety of other tests.
as far as day to day, it really depends on the timing for the IV medications. Usually you'll be woken up at an irritating hour for blood pokes and IV changes...you'll get a mediocre breakfast including a Boost! You may/may not have PT which can be walking the halls or a treadmill while your O2 is monitored. a respiratory therapist will come in for treatments, and you can expect a dietitian to visit occasionally.
tips:
make sure everyone knows the list of allergies. you may even want to post it on the door of your room.
make sure EVERYONE who comes into the room washes their hands properly and sanitizes as well. If someone is sick, do not let them enter or visit.
never hesitate to ask for a sleeping aid, sleep is crucial in recovery!
stay informed! you can NEVER ask too many questions. if a nurse/doctor does/says something you don't agree with, you have the right to inform their superior and follow the chain of command to mend the issue.
The ins and outs of a CF patient. From genetic testing, diagnosis, to treatment and life expectancy. *please note: I am NOT a medical professional. The things that I am sharing here and things I have learned over the past 24 years in living with CF, most of the information shared here is learned from my personal experience. Treatment for CF varies from patient to patient, and information written on this blog should not be utilized as professional advice*
No comments:
Post a Comment