The ins and outs of a CF patient. From genetic testing, diagnosis, to treatment and life expectancy. *please note: I am NOT a medical professional. The things that I am sharing here and things I have learned over the past 24 years in living with CF, most of the information shared here is learned from my personal experience. Treatment for CF varies from patient to patient, and information written on this blog should not be utilized as professional advice*
Tuesday, September 16, 2014
The Role of Antioxidants
The Cystic Fibrosis Foundation has funded research studies on antioxidant therapies in patients with CF.
Antioxidants counteract damaging effects on the body's cells caused by free radicals. Free radicals can cause a domino effect of damage on the body. By maintaining a higher number of antioxidants, the damage can be slowed down by neutralizing and removing free radicals from the bloodstream.
Although CF has negative implications on the digestion system, it is still pertinent to one's health to intake a well balanced diet high in nutritional value. The development of a new vitamin by Yasoo Health (the producers of Aquadek) is underway and will contain vitamins and micronutrients that are not in the currently recommended CF vitamins.
In the meantime, you can eat the following fruits, veggies, and nuts to up your daily dosage of antioxidants. Keep in mind that although they are good for you, too much of a good thing can be bad! If you decide to make any drastic changes in your diet or vitamin regimen, consult your doctor and dietician beforehand!
Resource
Monday, September 15, 2014
Bronchoscopy
A bronchoscopy is a procedure in which a patient's airways are examined. The larynx (voice box), trachea (wind pipe) and bronchii (smaller wind pipes within the lungs) are all observed as the patient breathes in and out. This technique is done in an exam room at a hospital or specialized clinic. It usually lasts about 30 minutes, but including prep time and recovery, it can take approximately 4 hours. Eating or drinking before the procedure is not allowed.
Medicine is usually administered via IV or by mouth to make you relaxed and sleepy.The anesthesiologist may administer a numbing medicine (lidocaine) through the bronchoscope to numb the larynx, trachea and bronchii.
The procedure is recorded with a flexible, fiber optic bronchoscope, which has a light and small camera. A bronchoscope is a soft tube no larger than 1/4'' in diameter. It can be passed through the nose or throat.
During the procedure, your doctor may take a sample of lung fluid or tissue for further testing. The following methods can be used to obtain a lung tissue sample:
- Bronchoalveolar lavage- A small amount of saline solution (salt water) is administered through the bronchoscope and into part of your lung. The salt water is then suctioned out. The fluid picks up cells and bacteria from the airway, which your will be reviewed.
- Transbronchial needle aspiration- A needle is inserted into the bronchoscope and removes cells from the lymph nodes in your lungs. These nodes are small, bean-shaped masses. They trap bacteria and cancer cells and help fight infections.
- Transbronchial lung biopsy- Forceps are entered into the bronchoscope and a small tissue sample from inside the lung is taken.
During the procedure, oxygen levels will be observed to ensure enough air is getting to the lungs. If the levels decrease, oxygen will be given.
Side effects of the procedure are generally minimal. They may include soreness of the throat, fever, hoarseness, cough or wheezing. To prevent/minimize the side effects, anti-inflammatories may be prescribed by the performing physician.
Tips:
- Inform the physician if there have been any changes in the patient's condition- fever, worsening cough,hemoptysis, etc.
- Bring the a detailed list of medications including dosages, list of allergies
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