Going on a vacation?

Paris, France 2007

It can be overwhelming, you know, living with CF and trying to maintain a normal life. We all like to live as carefree as possible, enjoy good food with great company, and take a nice summer vacation with our loved ones. I LOVE to travel. Unfortunately, I won’t be doing much of it until I finish my degree. I’ve been to France, Germany, Hawaii, Washington, Missouri, Florida, and Oklahoma (does that one REALLY count?!).

Like most people, I procrastinate. On everything, especially packing! To ensure you enjoy your vacation as much as possible, and with as little worry as possible, I’ve composed the following list to help.

-Talk to your doctor about where you’re going, when you’re going, and how you’re getting there. Some destinations (international) require additional vaccinations. In addition to that, your doctor can provide you with a certified letter stating your medical condition and a list of medications that you must take. This comes in handy at the airport when you take your nebulizer on board, medications, etc.  Organize your doctor’s note, list of medications, emergency contact list, and insurance documents in a folder and secure it. Ask your doctor about a Flutter (replaces the use of the Vest)

-Create an emergency contact list: doctors, nurses, family members, etc. Also be sure that those who are staying behind have a way to contact you.

-Make a list of medicines, supplies, snacks, etc. that you will need to take with you. If you have medication that needs to be refrigerated, invest in an insulated cooler or make prior arrangements for the flight, hotel, etc. Make sure all medications retain their original labels. Order refills before you depart to ensure the correct quantity of medication while you’re away.

-Pack extra tissue, toilet paper, lysol wipes and hand sanitizer

-Proceed with regular packing: clothes, sunscreen, walking shoes, sandals, extra towels, headphones, phone chargers, books, etc.

Resources:

The TSA offers special accommodations for those with medical conditions

Information for using o2, nebulizers, etc while in transit

I invested in a Pari portable nebulizer in 2007 and it is amazing. It comes with a car charger, carrying case, and wall charger. It's about the size of a cassette player (remember those?) and is very quiet when in use.